Life With Sarcoidosis

Contact Me

14 Responses

1. 

   Jan Lewis, on July 22, 2010 at 2:26 pm said:

   Vanderbilt Medical Center is doing research on Sarcoidosis. They now have enough research to prove that it is caused by bacteria. The current procedure they are using involves the use of 4 antibiotics all at one time. The dr. is “Wonder Drake.” All I can say is she is absolutely awesome. I was diagnosed in 2000 but did nothing but alternative medicine. It’s been a long time since I was bothered by the disease (lungs/liver/spleen), but I went to see Dr. Drake yesterday just to be screened. My breathing tests came back fantastic. So, while I wasn’t a candidate, I was pleased with my test results.

   I believe there is something that can help you. Contact her. Drake, Wonder”

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     Basil Rene, on July 23, 2010 at 8:10 pm said:

     Thank you for the information. I looked up Dr. Drake on the Vanderbilt web site and it sounds very interesting. I called her office and spoke with her nurse and she is still accepting new patients for her study, and Dr. Drake will call me back next week to speak.

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     Basil Rene, on August 18, 2010 at 5:11 pm said:

     I did get in contact with Dr. Drake’s office, but they are not taking new patients. The are still accepting new people for her study, but I do not qualify as my sarcoidosis does not affect the skin.

     Reply
2. 

   Welcome « Life With Sarcoidosis, on March 9, 2011 at 1:31 pm said:

   [...] Contact Me [...]

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     Pauline Nipper, on October 11, 2011 at 7:35 pm said:

     Just found your blog. Am interested in knowing of anyione with sarcoidosis of the liver leading to cirrhosis. Understand it is less than 1% of sarcoid sufferers. Am starting the process to see if I qualify for a liver transplant. Have never had lung problems but have also had a serious bout with demylenating neuropathy, which I understand to be also unusual.

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       Basil Rene, on November 11, 2011 at 8:31 am said:

       Hopefully someone here can answer you. I personally have no experience or know anyone with Sarcoidosis of the liver. If you have a facebook account, you can probably post your question on my facebook page, “Living With Sarcoidosis”.
3. 

   Deborah Lardinois, on November 29, 2011 at 1:52 pm said:

   Hi, I was researching Sarcoidosis on the internet and happened upon your blog. Thanks for sharing your information. I have been diagnosed with Sarcoidosis for more than 10 years now (lungs, eyes, heart issues – from oxygen deprivation), have taken prednisone (unsuccessfully), was on methotrexate for 10 years, and have just now tried remicade (unsuccessfully and with horrible allergic reaction). My doctor is now going to plaquenil and cellcept. I live in Colorado at altitude which presents lots more problems. Anyway, I just wanted to say, hang in there. thanks for sharing info, and if you ever want to compare notes or chat, I’m on Facebook. Deborah Lardinois

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4. 

   Erin, Bella Bleue, on March 25, 2012 at 11:08 am said:

   It is wonderful to listen to your story and growth! I have been visiting your site as well. I have nominated you for the Versatile Blogger Award! Congratulations! See the link http://bellableue.com/2012/03/25/versatile-blogger-award-2/
   Continued blessings on your journey and those whose lives you continue to touch, Erin, Bella Bleue

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     Basil Rene, on March 26, 2012 at 2:13 am said:

     Wow. Thank you very much!

     ____________________________ Sent from my iPhone on AT&T®

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       Erin, Bella Bleue, on March 26, 2012 at 12:51 pm said:

       You are very welcome! Thank you as well for the nomination! Blessings!
5. 

   Erin, Bella Bleue, on May 20, 2012 at 10:07 am said:

   Thank you for your beautiful inspiration and continued love for living life! I have nominated you for the Very Inpspiring Blogger Award: http://bellableue.com/2012/05/20/the-very-inspiring-blogger-award-2/ Blessings, Erin

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     Basil Rene, on May 21, 2012 at 12:05 am said:

     Thank you for nominating me for yet another blogger award. I am truly honored and I am glad you find my blog as inspiring as I find yours! Thanks again!!

     Reply
6. 

   Stephen W. Wallace, D.D.S., on December 5, 2012 at 7:14 am said:

   Mr. Rene, thank you for using your gift for writing to create this informative, useful, and inspiring blog. I just came across it this morning and have enjoyed reading the articles in the archives, especially the “Prednisone Demon”. You have managed to turn our mutual illness into an opportunity to help others by providing this place for us to connect with and learn from fellow sarcoidosis sufferers, instead of feeling so alone with our strange disease. Well done and keep up the good work! My very best regards, Stephen W. Wallace, D.D.S.

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     Basil Rene, on December 5, 2012 at 9:07 am said:

     Thanks for the positive feedback Steven. Glad my musings can put a positive spin on such a negative things.

     Reply

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